ID 47-4456113
LOVE EVERY ONE. PROMOTING AN ALL INCLUSIVE WORLD. SPREADING AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), FUNDING RESEARCH AND SUPPORTING CHILDREN AND FAMILIES AFFECTED BY CHILDHOOD DISEASES AND DISORDERS.
Check out Leo's Clemson article!
Diagnosed with SMA at 3 weeks
Is now 3 YEARS OLD!
Loves and an all things outdoors
Loves his 4-legged "brother" and very best friend Wyatt
Uses a computer with EYE GAZE technology for communication
Loves going to the zoo
Dislikes being told "No"
Is very opinionated!
Requires 24/7 care from Mom or Dad and is dependent on medical equipment
FOLLOW LEO ON FACEBOOK!
Follow Leo as he starts school, goes on adventures
and shines his bright light along his journey with SMA!
GO LEO GO WAS A HUGE SUCCESS !
It really was an amazing day, and it would not have been possible with out the support of Leo’s Pride, our amazing sponsors, community and an incredible team that organized and executed on every idea that came up!
Leo's Pride Foundation is now a 501(c) !
It has happened. The first treatment ever for SMA (for all ages, for all types!) has been approved by the FDA. For years we have watched the children in these trials grow stronger while others like Leo grew weaker. We have watched them hit milestones, use manual wheelchairs independently, stand and take steps. They have given hope to so many. They are the faces of the “new SMA”
Send Leo a prayer !
We believe in the power of prayer. Leo loves to say his prayers, and loves hearing about people in Leo's Pride praying for him.