ID 47-4456113

LOVE EVERY ONE. PROMOTING AN ALL INCLUSIVE WORLD.  SPREADING AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), FUNDING RESEARCH AND SUPPORTING CHILDREN AND FAMILIES AFFECTED BY CHILDHOOD DISEASES AND DISORDERS.

Applications are now being accepted for the LEO Grant! Please share!


We are so fortunate to have such a huge support network of people that wanted to help Leo with whatever he needed. At that time, an accessible van was something we dreamed of Leo having. With a portion of the funds raised from the 2014 Go Leo Go, Leo was able to get an accessible van which has changed our lives! We stay on the GO! Leo is able to travel safely, comfortably and with ease. What once was a difficult trip to the store or park, has turned into an everyday occurrence.  He has been from Wisconsin to Florida, and much in between. He has strolled through Nashville, been to one of the highest peaks on the Blue Ridge Mountains, cruised SC beaches and toured the Low Country. He has even met Mickey Mouse himself at an amazing vacation in Disney World! We are so grateful from the generous support of Leo's Pride that made his accessible van possible, and has given Leo the opportunity to experience so many different places.

This has been the inspiration for our new Grant, the Love Every One (LEO) Grant, in which we will be awarding to two different families! We are so grateful for our van, and we want others to be able to experience the joy and freedom that comes with obtaining an accessible van. A portion of the funds raised from Go Leo Go and your generous donations will go towards this grant. We will be awarding two families with $5000 each to go towards to the purchase of an accessible vehicle or the modification of an existing vehicle. This is intended for a family with a child 18 yrs or younger in need of accessible transportation. While we recognize this need extends much further beyond this age category, we have decided this is part of the criteria for this year’s LEO Grant. It is our dream that this grant will continue to grow and we can help many others. Applications are being accepted as of today, January 17. There is no current deadline and we will continue accepting applications on a rolling basis as we hope this will be an annual occurrence. Updates will be posted via Facebook and leospride.org.

General criteria for application is as follows.


(1) The applicant MUST be 18 yrs or younger AND 1) have SMA OR  2) live in South Carolina with another existing medical condition that requires an accessible van.

(2) The purpose of the grant MUST be for obtaining an accessible vehicle or for modification of an existing vehicle owned by applicant (or applicant’s caregivers).

(3) The applicant, or others on their behalf, MUST be actively fundraising for the purchase of an accessible van or for modification of a van.

The LEO grant